my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
Think about this next time you think it’s just a stupid gimick
I had a good friend who died of ALS about ten years ago. It is one of the worst ways to die. No matter how much the ice bucket challenge seems like just another fad or meme, it actually has raised money and awareness for this debilitating disease. Keep the buckets pouring.
every family got a plastic bag full of plastic bags
do you ever lay in bed at 5am unable to sleep and wonder what would happen if you switched the theme songs from parks and rec and the office
Stop calling what’s happening in Ferguson a “riot”.
It is not a riot.
Vancouver losing the Stanley Cup a few years ago was a riot. It was angry, drunken destruction with no purpose. (And as a Canadian, it was a shameful event)
Ferguson is not a riot. It is a protest. It is an uprising. It is a civil rights revolution. The prople of Ferguson may be angry, but they have a reason to be angry, and they are not violent, and they are not hooligans, thugs or looters. They are protesting for their human rights which are currently being denied.
Look at the difference between a riot and a protest. A riot is chaos. A protest has a purpose.
Video: Nick Offerman Recites Some Profound Shower Thoughts [gifs via]
I FUCKING LOVE THIS.
I kind of told my sixth grade teacher this in front of the class when she said “Ladies don’t do that.”
I’m so proud.
I fuckin love this, this is so me I’m sightly dying inside because this post is me. Every since bit of it!
do you ever think that oliver wood was created for the sole purpose of innuendo
even his name is an innuendo
It gets even better when you realize the actor’s name was Sean Biggerstaff.